ME Awareness Month 2021
ME Awareness Day | May 12, 2021
Kirsty and Jess explore the Optimum Health Clinic’s latest updates for ME/CFS Awareness Day – including sharing their hope for increased funding for research and support for quality healthcare in this poorly understood and underfunded disease.
0:00 ME Awareness Week
0:55 The scale of ME/CFS globally
2:22 The effects of poor understanding and underfunding on patients
3:15 How the OHC helps patients navigate the stigma
4:10 NICE reviewing and updated ME/CFS Guidelines
5:02 Honouring the “energy envelope”
5:40 Diagnosis times reduced to support recovery
6:14 The impact of CFS on the economy
7:14 Long COVID’s impact on the ME/CFS discussion
8:42 Resources to support education and recovery
Resources: Counting the Cost: Economic implications of Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis https://www.theoptimumhealthclinic.com/wp…
Recovery stories: https://youtube.com/playlist?list=PLk…
Updating NICE Guidelines for ME/CFS diagnosis and management https://www.nice.org.uk/news/article/… 2021
Fatigue Super Conference https://www.fatiguesuperconference.co…
“Counting the Cost” discussed in Parliament for awareness and support for research for ME/CFS (June 21, 2018, 15:26:00) 15:26:00 https://parliamentlive.tv/event/index…
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