ME Awareness Day | May 12, 2021

Kirsty and Jess explore the Optimum Health Clinic’s latest updates for ME/CFS Awareness Day – including sharing their hope for increased funding for research and support for quality healthcare in this poorly understood and underfunded disease.

0:00 ME Awareness Week

0:55 The scale of ME/CFS globally

2:22 The effects of poor understanding and underfunding on patients

3:15 How the OHC helps patients navigate the stigma

4:10 NICE reviewing and updated ME/CFS Guidelines

5:02 Honouring the “energy envelope”

5:40 Diagnosis times reduced to support recovery

6:14 The impact of CFS on the economy

7:14 Long COVID’s impact on the ME/CFS discussion

8:42 Resources to support education and recovery

Resources: Counting the Cost: Economic implications of Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis https://www.theoptimumhealthclinic.com/wp…

Recovery stories: https://youtube.com/playlist?list=PLk…

Updating NICE Guidelines for ME/CFS diagnosis and management https://www.nice.org.uk/news/article/… 2021

Fatigue Super Conference https://www.fatiguesuperconference.co…

“Counting the Cost” discussed in Parliament for awareness and support for research for ME/CFS (June 21, 2018, 15:26:00) 15:26:00 https://parliamentlive.tv/event/index…